Instead, here we are 4 weeks after that surgery, and Samuel still has not been able to tolerate feeds. His stomach has had a hard time absorbing food, and his intestines haven't been moving anything along. His intestines are now so full of gas and distended that they are afraid to try feeds again for fear of causing a perforation of his intestines. For most of this time the doctors have been stumped as to why this is happening, especially since Samuel seemed to tolerate his feeds so well before surgery. We are now waiting on the results of a biopsy that was sent into a specialized lab for testing, due to an abnormal appearance of the cells. Hopefully we will have those results by Monday. Based on the results of that biopsy, we may be looking at another GI surgery of some kind for our brave boy...
That's the medical side of things.
The non-medical perspective?
Samuel's GI tract is broken. Only God knows the true cause of what is going on. God, the Great Physician, can heal in an instant. Would you join us in praying for that healing?
We are asking y'all to help us cover Samuel in prayer for 48 hours straight, starting at 9am (CST) Sunday, until 9am (CST) Tuesday.
You can do this by clicking on this link:
I know some of the Sunday time slots will be during church for many of y'all. Would you consider signing up with your Sunday school class, small group, or church? There will possibly be some big decisions being made by the doctors on Monday, so we want to begin by covering the 24 hours before that in prayer, as we ask for healing and wisdom.
Here are specific things to pray for:
- Pray for healing - Just as God changed the diagnosis of Samuel's heart after the first week of his life, we know that God can change whatever diagnosis is given for Samuel's GI problems! We are praying for COMPLETE healing! That normal function and motility would return to Samuel's stomach, intestines, and colon. That any nerve cells that may be missing would be restored!
- Pray for wisdom - There are so many doctors working on Samuel's case, and some times there are varying opinions. Please pray that God would give wisdom to each of the doctors, and that He would unify them on the best plan of action for Samuel.
- Pray for Samuel's lungs - The past 4 weeks have been hard on Samuel's lungs because his whole GI tract is distended and pushing up on them. This, along with his already-diagnosed restrictive lung disease, has greatly decreased his lung capacity, which causes him to need to breathe faster and receive extra support from the ventilator. Please pray that God would continue healing and strengthening Samuel's lungs so that they will be ready for extubation when the time comes.
- Pray for grace - Many doctors that we have talked to over the past several weeks have said over and over again, "I'm frustrated as the doctor, I can't imagine how frustrated y'all must be as the parents!" While it is a frustrating situation, Seth and I have submitted to trusting in God's timing. Pray that we can use those opportunities to convey God's grace to the doctors, so that we can be lights to those around us.
As always, we are so grateful for each of you.
This is His story, and it is all for His glory!
Seth and Hannah- This came up on my feed today and I thought of you. Its an amazing song and I hope you are reminded of Gods Power. Praying God continues to carry you and Samuel on His shoulders and your witness will be elevated even more!!! Love, Julie
When I am down, and, oh, my soul, so weary
When troubles come, and my heart burdened be
Then, I am still and wait here in the silence
Until you come and sit awhile with me
You raise me up, so I can stand on mountains
You raise me up to walk on stormy seas
I am strong when I am on your shoulders
You raise me up to more than I can be
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