Wednesday, August 15, 2018

He is Worthy of Praise!

One year ago, yesterday, we saw our precious Samuel David for the first time!  We were overwhelmed, and our hearts were filled with joy when we saw his tiny heart flickering!  God had again placed life in my womb, and we prayed that this time we would be given the unspeakable joy of holding that life in our arms!  We had no way of knowing that day just how special that tiny flickering heart was.  We never would have imagined how much help that tiny heart would need to be able to function well.  But we praised God then, and we continue to praise God now, for Samuel's precious heart!

In fact, praising God for things has become a big part of our every day life.  We start every prayer by giving thanks and praising God.  We are learning to praise God in EVERY circumstance.  And, believe me, it changes your perspective!  It forces you to focus on God's unfailing attributes, rather than the circumstances surrounding you.  We praise God for the little things, we praise God through the hard things, we praise God even when prayers aren't answered the way we hoped.  Because God always remains faithful and worthy of our praise!
I will extol You, my God and King,
and bless Your name forever and ever.
Every day I will bless You
and praise Your name forever and ever.
Great is the Lord, and greatly to be praised,
and His greatness is unsearchable.
Psalm 145:1-3
Tomorrow is a big day!  For the past 4 months Samuel's heart has really taken a back seat to his other struggles.  They have still monitored it very closely (we are in the CICU, after all!), but if his heart were the only challenge we would have been back in Arkansas 3 months ago!  But since we have been here 3 more months dealing with other complications, that means Samuel's next heart surgery is 3 months closer.  The problem is that we don't know just how far out his next surgery will be.  So now that Samuel's GI issues are resolving, and he is able to breathe more comfortably, Samuel's heart is back to the forefront of the discussion.

Tomorrow morning (Thursday) Samuel's case will be presented at the weekly cardiology conference, and all of the doctors will give their input.  They will be deciding what interventions, if any, need to be done in the immediate future.  They will weigh the risks and benefits of trying to balloon the scar tissue in his aorta again.  They will be trying to predict how far out we may be from Samuel's next heart surgery.  And these decisions will dictate our timeline for getting back to Arkansas Children's Hospital - whether we are just weeks away from transport to our home state or if we still have months to go here in Delaware.

We have witnessed, time and time again, how God has used doctors to make the right decisions at just the right time.  We trust in His sovereignty of bringing just the right doctors to us at just the right time.  So tomorrow we are again praying that He will have just the right doctors there.  We are praying that He will impart wisdom to make the best decision.  And we are praying that God will allow the doctors to speak in unity.
As always, we are anxious to get closer to home, but we also want to do what is best for Samuel, even if that means several more months in Delaware.

Prayer Requests:
  1. Pray for unity and wisdom tomorrow as the doctors meet to discuss Samuel's heart!  We likely won't get an exact answer tomorrow, but that's when a majority of the discussion will be happening.
  2. Pray that Samuel's GI tract will continue to regulate and do well with feeds!  For the first several days his stools were very loose, which caused his electrolytes to get thrown for a loop as he became dehydrated.  His levels are looking better now, but pray that things will continue to regulate since it's been nearly 4 months since everything was functioning!
  3. Pray that the site where Samuel's ostomy was will heal up well.  They closed it with a wound VAC, which was left on for several days post-surgery.  When they took it off Sunday the wound wasn't completely closed, but also didn't look too bad.  They are just keeping a close eye on it to make sure it closes on its own and that it doesn't get infected.
  1. Samuel is back up to his goal amount of feeds, as of last night!
  2. So many dirty diapers!
  3. Samuel is developing so much physically! His head control has improved leaps and bounds just over the past week! He is also responding to us with so many smiles now!

This is His story, and it is ALL for His glory!

No comments:

Post a Comment

2 BIG Updates!!!

It has been a long time coming, but we are back! Back in the blogging world. Back to sharing our story in order that God may be glorifie...