One Day at a Time

Just another day in the CICU.
Just another day rocking the wet/cold rag.
Just another day getting poked for cultures.
Just another day of keeping the doctors guessing.
Just another day in Samuel's tough world.

But we are grateful for the blessings of this day, because we get to spend it with him! Samuel David is still here with us - 128 days later!

Medically? Medically today wasn't a good day. But that's to be expected. We live day-to-day basking in the joy of the good days, not because it means they're here to stay, but because we know there are likely many more hard days in the future. So we have to hold on.

This is what it looks like to have a chronically ill child.

It's not that we don't have hope. It's not that we don't believe that God can heal him completely. But medically? Medically there is no cure for Samuel's complicated conditions. When we celebrate a victory - a successful surgery, a medication wean, a "normal" baby milestone passed - we are not celebrating a cure. We are not falling into the trap of thinking it's smooth sailing from here on out. Samuel will be dealing with his medical condition his whole life - and that means good days, and bad.

So we take it one day at a time. We never take the good days for granted, because we know it could be a while before we see another one. Progress? Progress happens, yes. But Samuel has been known to take steps backwards after many major victories. That doesn't make the victories any less exciting, or diminish our gratitude in any way, but it reminds us to not get too far ahead of ourselves. It reminds us that our trust in God's sovereignty must remain unwavering no matter the shift in circumstances from one moment to the next.

So we take it One. Day. At. A. Time.

Always remembering...

This is His story, and it is ALL for His glory!