On Wednesday Samuel had a CT scan of his heart, and we got those results yesterday. We were praying to see another miracle! Praying that the cardiologists would see a reconstructed aorta that wouldn't require surgery, just as God has already reconstructed the left chambers!
We didn't get that miracle.
Samuel's aorta still looks the same as they expected it to from his echocardiograms. All of the cardiologists here agree that it is not large enough to support blood flow to the rest of his body, and it will need to be reconstructed with a major bypass surgery. There are still a lot of decisions to be made regarding timelines and temporary fixes in the meantime, and Samuel's diagnosis of EVC complicates the decision making process.
But in the midst of this discouraging news, God also answered another prayer.
We were able to hold Samuel this week!!!
It had been 13 days since we were last able to hold him, and I can't describe how much good this does for our hearts. God is faithful, even when we get news that we didn't want. He is faithful to fill our hearts in other ways. He is faithful to give us just what we need in order to get us through the hard times. We know that He will not call us to walk through something without providing us with the necessary strength. Moments like this help provide us with that strength. We are so grateful for this blessing!
This is my comfort in my affliction, that Your promise gives me life.
Thank you for continuing to pray with and for us.
This is His story, and it is all for His glory!
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